The lived experience of well children living in families with a chronically ill child : a phenomenological inquiry

Material Information

Title:
The lived experience of well children living in families with a chronically ill child : a phenomenological inquiry
Series Title:
Barry University Dissertations -- School of Education
Creator:
Vicens-Ortiz, Elizabeth
Place of Publication:
Miami, Fla.
Publisher:
Barry University
Publication Date:
Language:
English
Physical Description:
vii, 188 leaves ; 28 cm

Thesis/Dissertation Information

Degree Disciplines:
Education

Notes

Abstract:
Purpose : From a review of the existing literature addressing well siblings of chronically ill children, it is apparent that most of the research has been quantitative in method, and the findings from them have been largely inconsistent. This may be due to the large amount of extraneous variables, which cannot all be identified or controlled for. Thus, it would be difficult to make clinical recommendations based on available research. This researcher believes that a thorough qualitative analysis done within the context of the family system would be helpful in increasing an overall understanding of the essence or central underlying meaning of the experiences of this population. Method : Data mainly consists of researcher self-reflection and transcribed, semi-structured interviews with 7 participants between the ages of 8 and 16. Relevant statements from the transcriptions were divided into groups. This process is referred to as extracting significant statements. A meaning was then formulated for each significant statement. These meanings were be grouped into themes. The researcher’s preconceived ideas were included but bracketed so as not to combine with the voices of the participants. Themes were then tied together to form an exhaustive description of the phenomenon. Findings : Chapter 4 gives readers an increased overall understanding of the lived experiences of well siblings by presenting, within the context of the family, an exhaustive description of their experiences derived from participant interviews. The description is meant to increase the reader’s understanding of how well siblings are affected psychologically and emotionally by living with an ill sibling in the family and what factors the well siblings experience as contributing to positive or negative effects. Chapter 5 presents findings derived from the well sibling descriptions, and recommendations. The themes that arise from the participant descriptions demonstrate particular patterns of behavior, developed characteristics, and coping well siblings utilize while attempting to get their own emotional and psychological needs met within the family. Universal meaning is derived by providing readers a deeper understanding of the well sibling experience. The recommendations suggest that strength-based counseling models can serve as an effective treatment approach for well siblings who are in need of intervention.
Thesis:
Thesis (Ph.D.)--Barry University, 2007.
Bibliography:
Includes bibliographical references (leaves 112-122).

Record Information

Source Institution:
Barry University
Holding Location:
Barry University Archives and Special Collections
Rights Management:
Copyright Elizabeth Vicens-Ortiz. Permission granted to Barry University to digitize, archive and distribute this item for non-profit research and educational purposes. Any reuse of this item in excess of fair use or other copyright exemptions requires permission of the copyright holder.
Resource Identifier:
RJ380.V53 2007_VicensOrtizElizabeth ( BU-Local )
Classification:
RJ380.V53 2007 ( lcc )

BUDC Membership

Aggregations:
Barry University
Theses and Dissertations