The lived experience of adults with sickle cell disease during vaso-occlusive crises

Material Information

Title:
The lived experience of adults with sickle cell disease during vaso-occlusive crises
Series Title:
Barry University Dissertations -- College of Nursing and Health Sciences
Creator:
Adeagbo, Olufolake
Place of Publication:
Miami, Fla.
Publisher:
Barry University
Publication Date:
Language:
English
Physical Description:
xv, 214 leaves : illustrations

Thesis/Dissertation Information

Degree Disciplines:
Nursing

Subjects

Subjects / Keywords:
Sickle cell anemia -- Patients -- United States ( lcsh )
Anemia, Sickle cell ( lcsh )
Genetic disorders ( lcsh )
Pain -- Treatment ( lcsh )
Genre:
Academic theses ( lcsh )

Notes

Abstract:
Background: Many sickle cell disease (SCD) patients continue to go through multiple vaso-occlusive crises (VOC) each year. The pain experienced during VOC is either undertreated or inappropriately managed because of the low attention paid by healthcare providers to SCD patients during their sickle crises. Exploring the lived experiences of adults with SCD during VOC will help the frontline healthcare providers to provide better care and develop more culturally sensitive practices that will minimize the physical and psychological suffering associated with VOC. Purpose: This study explored the lived experience of adults with sickle cell disease, living in South Florida, during vaso-occlusive crises. Philosophical Underpinning: A heuristic qualitative approach was guided by the interpretivist paradigm to gain an understanding of the lived experience of adults with sickle cell disease. Methods: The sample was adults with SCD who have experienced vaso-occlusive crises in South Florida. Purposive and snowball sampling was be used. Data analysis was guided by Moustakas’ (1994) transcendental phenomenology. Results: From 20 sickle cell individuals who have experienced at least a VOC, four themes emerged Excruciating Pain, Depressing, Feeling Helpless, and Dreading Healthcare Workers’ Attitude. Conclusions: This study revealed that during vaso-occlusive crises, sickle cell individuals go through physical and psychological sufferings. The participants revealed that healthcare workers fail to acknowledge their sufferings during VOC, and they fail to treat them effectively.
Thesis:
Thesis (Ph.D.)--Barry University, 2019.
Bibliography:
Includes bibliographical references (leaves 191-205).

Record Information

Source Institution:
Barry University
Holding Location:
Barry University Archives and Special Collections
Rights Management:
Copyright Olufolake Adeagbo. Permission granted to Barry University to digitize, archive and distribute this item for non-profit research and educational purposes. Any reuse of this item in excess of fair use or other copyright exemptions requires permission of the copyright holder.
Resource Identifier:
RC641.7.S5 A34 2019_AdeagboOlufolake ( BU-Local )
Classification:
RC641.7.S5 A34 2019 ( lcc )

BUDC Membership

Aggregations:
Barry University
Theses and Dissertations